This section of the Deafblind Information website is dedicated to the stories of people living with vision and hearing impairments – whether from the perspective of the individual, their family or one of their carers right through to the teachers, therapists and the wider community involved in someone’s life.
It may be their experience and their personal achievements. It may also be about their frustration or their difficulties in accessing what they need to fulfill their life choices. More often than not, the personal journey that is documented is more powerful that a library of text books.
You may choose to write a short article, you may want to add a captioned photograph or upload video footage. Please use the downloadable form.
If you need further assistance we would be delighted to help you – please email firstname.lastname@example.org or phone +61 8 9473 5479.
“My story has been that of challenge, of finding a way and living my life and making the most of what I have rather than dwelling on what I don’t.”
Living with Usher’s II is like..
Wilma has updated her story …
Being a professional robberee! (the one being robbed!!) On an all too regular basis, emotionally and often practically it is like being robbed (or sometimes having the whole house burned down!!) I often say, your body is the biggest thief you’ll ever meet!
I was born in Auckland New Zealand on June 12th 1962 with the same congenital eye disease my brother had. I have optic atrophy.
Lil Martin has experienced deteriorating sight and hearing for a number of years.
Alex wanted to share his experiences about when he attended the Senses Deafblind camp in November 2012.
Carol enjoyed the deaf/blind camping & loved it very much. Please read her story…
Deb has written about her experiences when she attended Senses Deafblind camp in November 2012.
After five years in a special school for the hard of hearing, after changing schools, AT LAST I was allowed to take piano lessons!!!!!
My beautiful baby girl, Alessia arrived at 8:21pm on Monday February 19, 2007. She was beautiful; but something was way wrong, very wrong.
After a restless night, with what we thought was the first signs of teething, our 6 and a half month old baby boy was lying on the couch, very quiet and still.
I was born profoundly deaf in 1965 and I have Usher Syndrome which has resulted in me having impaired vision since the age of 20.
Chris from Coburg, Victoria wanted to say…
Linda – deafblind camp
Last year in November, when I attended the deafblind camp in Perth I loved it so much I decided then and there that I wanted to go to the Melbourne one.
So I booked. i got cold feet and nearly didn’t go but then about a week or so beforehand I found my enthusiasm for it again.
Please read if you want to know more about me!
Hi my name is Kirsty.
Cochlear Implant Surgery – A lived experience
A cochlear implant is a surgically implanted electronic device that provides a sense of sound, to a person who has a severe to profound hearing loss or a moderate to profound sensorineural hearing loss.
Edan Chapman was born with the rare genetic disorder known as Usher syndrome. He is – and always has been – profoundly Deaf. Now he is going slowly blind from retinitis pigmentosa. This is part one of a two-part story on Edan Chapman’s battle with Ushers.
Deb – my new home
In March 1999 I first moved out of home to my own place in Maylands. I liked living in my own place, I have support from DSC once a week to go shopping and some cooking.